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Voices of ALS

158 Pins
 · Last updated 3d
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ALS News Today
a poster with an image of a lighthouse and the words, column of the week
The chapter in which our daughter goes away and her father cries
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with the words, taking pleasure in the normal activities we can still do
Taking pleasure in the ‘normal’ activities we can still do
Catch up on the #ALSNewsToday Column of the Week here. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Dagmar Munn shares the importance of knowing the facts when it comes to ALS, when there are often lots of reasons to jump to conclusions. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Fitness Diet, Gymnastics Camp, Jumping To Conclusions, Reading Recommendations, Health Diet, Moving Forward, News Today, Help Me, Growing Up
Fitness Diet
Gymnastics Camp
Jumping To Conclusions
Reading Recommendations
Health Diet
Moving Forward
News Today
Help Me
Growing Up
Having all the facts helps me live with ALS
Dagmar Munn shares the importance of knowing the facts when it comes to ALS, when there are often lots of reasons to jump to conclusions. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with an image of a woman in glasses and a quote from the author
Teaching Sign Language
Aerobic Dance
Teach Dance
Dont Lose Yourself
Learn Sign Language
Fitness Instructor
Wellness Programs
Dance Class
Sign language and aerobic dance taught me a lesson in leadership
The ALS community has many leaders and followers, says Dagmar Munn. But she cautions that we must be careful about whose advice we’re following. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness At The Beach, Morning On The Beach, Big Lake, The Breakers, Family Outing, Busy Life, Living Well
At The Beach
Morning On The Beach
Big Lake
The Breakers
Family Outing
Busy Life
Living Well
A morning on the beach, reflecting on past visits and stages of ALS
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
From the time he was diagnosed, Juliet Taylor’s husband’s ALS was never the same day to day. But one thing was consistent: their support team kept showing up. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Als Symptoms, The Greatest Gift, Never The Same, Taylor S, Day To Day, To Day, Support Team
Als Symptoms
The Greatest Gift
Never The Same
Taylor S
Day To Day
To Day
Support Team
The gift of presence made us less isolated while living with ALS
From the time he was diagnosed, Juliet Taylor’s husband’s ALS was never the same day to day. But one thing was consistent: their support team kept showing up. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Loved Ones, The Gift, To Tell, Read More
Loved Ones
The Gift
To Tell
Read More
The gift of presence made us less isolated while living with ALS
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a woman smiling in front of puzzle pieces with the words expert voice, the cost of als
Financial Counseling
Living Trust
Out Of Pocket
Durable Medical Equipment
Health Insurance Plans
Feeling Frustrated
Healthcare System
Expert Voices: The Cost of ALS
Did you know ALS patients can pay between $80,000 and $250,000 a year out of pocket for care and treatment? An expert on the topic weighs in on resources that can help: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Dagmar Munn wasn’t prepared for the realization that a recent spring-cleaning project offered her. She reflects here. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Spring Cleaning, Dresser Drawer, Remote Island, Old Clothes, Never Give Up
Spring Cleaning
Dresser Drawer
Remote Island
Old Clothes
Never Give Up
Just why was I saving some of my old clothes?
Dagmar Munn wasn’t prepared for the realization that a recent spring-cleaning project offered her. She reflects here. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness The Fear, Bad News, Losing Her, Losing Me
The Fear
Bad News
Losing Her
Losing Me
Recognizing and managing the fear that ALS triggers
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Technology has come a long way, but when it comes to sleep solutions, it isn’t quite there yet. Kristin Neva shares what improvements would make a difference: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Sleep Solutions, Big Guy, Caregiver, Make A Difference, To Sleep, It Hurts
Sleep Solutions
Big Guy
Caregiver
Make A Difference
To Sleep
It Hurts
Hoping for better technological solutions for people with ALS
Technology has come a long way, but when it comes to sleep solutions, it isn’t quite there yet. Kristin Neva shares what improvements would make a difference: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Spending Time With Friends, Time With Friends, Free Day, Computer System, High School Graduation, Graduate School
Spending Time With Friends
Time With Friends
Free Day
Computer System
High School Graduation
Graduate School
ALS makes it hard for my husband to participate in group conversation
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
James Clingman is older than most patients, but he’s decided he still has a lot to give to the ALS community. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness I Win, Love Life, Documentaries
I Win
Love Life
Documentaries
Finding new ways to help my ALS community
James Clingman is older than most patients, but he’s decided he still has a lot to give to the ALS community. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Social Media, Tech Innovation, New Series, Game Changer
Social Media
Tech Innovation
New Series
Game Changer
Among the various ALS resources out there, this one’s a game changer
Catch up on the #ALSNewsToday Column of the Week here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
an info sheet describing the different stages of sleep and how to use it in bed
Amyotrophic Lateral
Anatomy Bones
Muscle Twitching
Liver Diet
Breathing Problems
Hospice Care
Muscle Weakness
Nerve Cell
Feeding Tube
ALS stages and progression timeline
How familiar are you with the various stages of ALS? We break them down in detail here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness