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ALS News Today Forums

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ALS News Today
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Motor Neuron
Genetic Diseases
Inflammation Causes
Gene Therapy
Group Study
Genetic Mutation
Genetic Testing
Environmental Factors
Mayo Clinic
Is non-familial ALS a genetic disease?
Community members share their thoughts on sporadic ALS and how genetics may play a part. Join in on our forums. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
A member of our forums says she doesn’t view herself as a “fighter” because fighting ALS takes too much energy. Instead, she faces each day with gratitude. Share your approach in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Word Choice, Lost Hope, Word Cloud, Losing A Child, Good Attitude, Really Love You, Over Dose, Medical Advice, Losing Her
Word Choice
Lost Hope
Word Cloud
Losing A Child
Good Attitude
Really Love You
Over Dose
Medical Advice
Losing Her
How do you approach each day with ALS?
A member of our forums says she doesn’t view herself as a “fighter” because fighting ALS takes too much energy. Instead, she faces each day with gratitude. Share your approach in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with the words what suggestions do you have for clearing throat mucus?
Suction Machine
Sea Sickness
Feeding Tube
Breast Pumps
Eat Right
Caregiver
Medical Supplies
Medical Professionals
What suggestions do you have for clearing throat mucus?
If you deal with swallowing issues, do you have tips for clearing phlegm from your throat? Are there any devices you’d recommend? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
The world of assistive devices grows every day. What tools are making the biggest difference in your life right now? Share in our forums. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Nebulizer Machine, Clear Lungs, Assistive Devices, Life Right Now, Assistive Technology, Family Doctors, Good Posture, Eye Strain
Nebulizer Machine
Clear Lungs
Assistive Devices
Life Right Now
Assistive Technology
Family Doctors
Good Posture
Eye Strain
What assistive device is helping you most right now?
The world of assistive devices grows every day. What tools are making the biggest difference in your life right now? Share in our forums. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
If your diagnosis was delayed, what factor do you think played the biggest role? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Neurology, I Fall, News Today, You Think, Things To Think About, Thinking Of You
Neurology
I Fall
News Today
You Think
Things To Think About
Thinking Of You
What do you think was the biggest reason your diagnosis was delayed?
If your diagnosis was delayed, what factor do you think played the biggest role? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with the words how do you approach each day of life with als?
A Day In Life
How do you approach each day of life with ALS?
One patient says it takes too much energy to “fight” ALS. Instead, she chooses to face each day with gratitude. What’s your take? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
an advertisement with the words what tips do you have for comfortable wearing ankle - foot orthoses?
Afo Brace
Orthotic Shoes
Ankle Braces
Sneaker Stores
Upper Arms
Lower Leg
Medical Equipment
The Process
What tips do you have for comfortably wearing ankle-foot orthoses?
There’s typically a wide learning curve when patients begin to use ankle-foot orthoses. Have you found any tips to make the process smoother? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Following your diagnosis, what do you remember being the best advice you received? Share with our forums community: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Als Awareness, The Best Advice, Gives Me Hope, Social Activities, Best Advice, Phone Protection, Ask For Help, Social Life, Ups And Downs
Als Awareness
The Best Advice
Gives Me Hope
Social Activities
Best Advice
Phone Protection
Ask For Help
Social Life
Ups And Downs
What was the best advice you received after your diagnosis?
Following your diagnosis, what do you remember being the best advice you received? Share with our forums community: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with an image of two people talking to each other and the words, have you tried any neuro / electric therapy?
Luke Luke
Life Quality
Internal Medicine
Clinical Trials
Have You Tried
Nerve
You Tried
Have you tried any Neuro/Electric therapy?
One forums member is deciding whether or not to try this type of therapy for muscle and/or nerve stimulation and is looking for advice. Join the conversation here: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a sign that says do you struggle with dry mouth?
Tongue Sores
Dry Mouth
Lower Lip
Grinding Teeth
Trying To Sleep
Problem Solved
Oral Care
Do you struggle with dry mouth?
If you deal with dry mouth, especially at night, have you found any solutions that help make it more manageable? Share in our forums. #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
a poster with the words do your doctors talk to you about als stages and progression?
Als Symptoms
Spinal Fluid
Dr Browns
Agree With You
Neuroscience
Talking To You
Do your doctors talk to you about ALS stages and progression?
How often do members of your healthcare team talk to you about ALS stages? Join the conversation in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Members of our forums are sharing their list of questions for newly diagnosed patients. What would you add? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Best Questions To Ask, Best Questions, Team Leadership, What Questions, List Of Questions, Fun Questions To Ask, Essential Questions, Health Screening
Best Questions To Ask
Best Questions
Team Leadership
What Questions
List Of Questions
Fun Questions To Ask
Essential Questions
Health Screening
What questions should you ask your doctor when you’re first diagnosed?
Members of our forums are sharing their list of questions for newly diagnosed patients. What would you add? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
How is your fatigue post-exercise? For one forums member, recuperating after physical activity is increasingly difficult. Do you have any tips? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Hour Workout, Virtual Class, Wellness Blog, Full Time Work, Physical Therapist, Physical Activity, Low Energy, Physical Activities
Hour Workout
Virtual Class
Wellness Blog
Full Time Work
Physical Therapist
Physical Activity
Low Energy
Physical Activities
How do you deal with the fatigue that follows physical activity or exercise?
How is your fatigue post-exercise? For one forums member, recuperating after physical activity is increasingly difficult. Do you have any tips? Share in our forums: #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
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Home Health Aide
Memory Care
Take Care Of Me
Interview Questions
The Agency
Have you hired anyone to help take care of your home or other non-medical needs?
If you have, how did you conduct your search? How did you go about discussing your specific, likely uncommon requirements? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
One member of our forums is looking for advice about fatigue that occurs after physical activity. Is this something you experience as well? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness Rule Of Thumb
Rule Of Thumb
Do you experience fatigue following physical activity?
One member of our forums is looking for advice about fatigue that occurs after physical activity. Is this something you experience as well? #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness